Overview of IDD-Related Syndromes: Pt. 2

Overview of IDD-Related Syndromes: Pt. 2 

This course provides an overview of specific syndromes that cause intellectual and developmental disabilities (IDD). You will learn about common features of six syndromes:

Williams syndrome
Angelman syndrome
Smith-Magenis syndrome
22q11.2 deletion syndrome
Tuberous sclerosis
Lennox-Gastaut syndrome

You will also learn about the type and severity of disability they typically cause, as well as syndrome-specific nursing considerations.

This course will not provide a full description of each syndrome’s behavioral characteristics and daily support needs. Instead, you will learn about the aspects of the syndrome that are most relevant to nurses, including where your role may intersect with other professionals’ roles.

People with IDD face significant challenges in receiving quality healthcare. They are more likely to have complex medical needs and experience worse outcomes compared to the general population. Knowledge of syndromes can help you recognize the type of care and supports a person might need. The impacts of a specific syndrome often change over a person’s lifetime, so it is important that you recognize the needs at each stage of life.

Recognizing patterns of need can improve coordination of care. You may need to coordinate care between multiple physicians and healthcare specialists. Healthcare professionals who do not specialize in working with individuals with disabilities may not be well-informed about syndrome-specific needs and risks. Nurses who support people with IDD must guide the individual’s treatment team in recognizing the person’s likely medical needs and pursuing the resources and tools to meet those needs.



$17.50

Hours: 1.75
REL-IDD-0-OIDDRS2

Certificates

Certificates provided by accrediting body (0 Match)

Course Details

Course Code: REL-IDD-0-OIDDRS2
Hours: 1.75
Type: Online Course
Content Expiration Date: 12/31/2022
Learning Objectives:
Identify six syndromes associated with intellectual and developmental disabilities and their characteristics.
Explain specific support needs associated with each of these syndromes.

Outline:
Section 1: Introduction

About This Course

Learning Objectives

Section 2: Williams Syndrome

Overview

Causes and Diagnosis

Impact on Body Systems

Common Medical Comorbidities

Other Nursing Needs

Behavioral or Mental Health Implications

Review

Summary

Section 3: Angelman Syndrome

Overview

Causes and Diagnosis

Impact on Body Systems

Common Medical Comorbidities

Other Nursing Needs

Behavioral or Mental Health Implications

Review

Summary

Section 4: Smith-Magenis Syndrome

Overview

Causes and Diagnosis

Impact on Body Systems

Common Medical Comorbidities

Other Nursing Needs

Behavioral or Mental Health Implications

Review

Summary

Section 5: 22q11.2 Deletion Syndrome

Overview

Causes and Diagnosis

Impact on Body Systems

Common Medical Comorbidities

Other Nursing Needs

Behavioral or Mental Health Implications

Review

Summary

Section 6: Tuberous Sclerosis Complex

Overview

Causes

Features and Diagnosis

Impact on Body Systems

The Effects of Tumors

Other Nursing Needs

Behavioral or Mental Health Implications

Review

Summary

Section 7: Lennox-Gastaut Syndrome

Overview

Causes and Diagnosis

Typical Features

Treatment

Nursing Needs

Behavioral or Mental Health Implications

Review

Summary

Section 8: Conclusion

Summary

Course Contributors

Resources

References

Congratulations!

Staff Writer: Katy Kunst, MBA, QIDP
Katy Kunst received her Bachelor of Arts in Psychology from the University of North Carolina at Chapel Hill, and her Master of Business Administration from Elon University. She has 14 years of experience serving people with intellectual and developmental disabilities and their supporters, including roles as direct support professional, program director, and training facilitator. She has created and facilitated training on topics including non-violent crisis interventions, person-centered planning, cultural competence, quality service delivery, regulatory compliance, and a variety of topics related to IDD services. Disclosure: Katy Kunst, MBA, QIDP has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.
Instructor: Catherine Kluttz-Hile, BSN, MA, RN, CDDN
Ms. Kluttz-Hile has worked with people with intellectual and developmental disabilities for over forty years. She is the President of Kluttz Health Care Consulting, PC. She works with organizations that provide supports for people with IDD in North Carolina. Over her career she has supervised health services, staff training, and outreach departments in NC developmental centers; in the Division of Public Health as a Nurse Consultant/Program Manager in programs for people with special health care needs and the NC Infant-Toddler Program. In addition, she has worked with community-based IDD programs in quality improvement/program development.  Ms. Kluttz-Hile is a Mentor Trainer for Person Centered Thinking through the Learning Community for Person Centered Thinking.

Ms. Kluttz-Hile is a member of the national Developmental Disabilities Nursing Association, where she holds a national certification in Developmental Disabilities Nursing.

Disclosure: Catherine Kluttz-Hile, BSN, MA, RN, CDDN has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.
Target Audience:
The target audience for this course is: Nurses; in the following settings: Intellectual Developmental Disabilities.
Relias will be transparent in disclosing if any commercial support, sponsorship or co-providership is present prior to the learner completing the course.
Course Delivery Method and Format
Asynchronous/Online Distance Learning; please see certificate details for specifics on delivery format.
Relias has a grievance policy in place to facilitate reports of dissatisfaction. Relias will make every effort to resolve each grievance in a mutually satisfactory manner. In order to report a complaint or grievance please contact Relias.
If you require special accommodations to complete this module, please contact Relias Support by completing the web form (https://www.relias.com/help) or by using the chat functionality.
All courses offered by Relias, LLC are developed from a foundation of diversity, inclusiveness, and a multicultural perspective. Knowledge, values and awareness related to cultural competency are infused throughout the course content.
Reference herein to any specific commercial product, process, or service by trade name, trademark, service mark, manufacturer or otherwise does not constitute or imply any endorsement, recommendation, or favoring of, or affiliation with, Relias, LLC.
All characteristics and organizations referenced in the following training are fictional. Any resemblance to any actual organizations or persons living or dead, is purely coincidental.
To earn continuing education credit for this course you must achieve a passing score of 80% on the post-test and complete the course evaluation.
Accommodations
If you require special accommodations to complete this module, please contact Relias Customer Support here.