Change is a natural part of life that can be both exciting and challenging. For youth with intellectual and developmental disabilities (IDD), the transition from child services to adult services can be complicated and overwhelming for them and their family. As the adolescent moves into adulthood, it is critical that they have access to a comprehensive array of individualized services and supports designed to maximize independence, inclusion, and self-determination in their community of choice. This course will provide information on what is offered by various adult services (including healthcare, education, employment, and residential services) and highlight how they differ from child services. An overview of various funding streams and benefit programs, including supplemental security income and healthcare insurance, is included. This course is appropriate for anyone supporting a person with IDD through transitions into adult services and adulthood.
Section 1: Introduction A. About This Course B. Learning Objectives Section 2: Introduction to Transition A. Transition and Change B. Ready, Set, Go? C. It is Never Too Early D. Review E. Summary Section 3: Pediatric to Adult Healthcare A. Background B. The Transition from Pediatric to Adult Healthcare C. Ready, Set, Organize D. The Role of a Medical Home in Supporting Transition E. Self-Management Healthcare Skills F. Challenges to a Successful Healthcare Transition G. Transition Plan H. Organizing Health Information I. Health Insurance Coverage J. The Age Puzzle K. It Is Never Too Early to Look at Your Options L. Legal Issues in Healthcare M. Review N. Summary Section 4: Federal and State Benefit Programs A. The Social Security System B. Some of the Numbers C. Supplemental Security Income D. Social Security Disability Insurance (SSDI) E. Childhood Disability Benefits F. Comparing SSI, SSDI, and CDB G. Substantial Gainful Activity H. Achieving a Better Life Experience (ABLE) Act I. Ready, Set, Celebrate J. Becoming an Adult at Age 18 K. Eligibility and Application Process L. Getting More Information M. It Is Never Too Early to Plan N. Review O. Summary Section 5: Transition to Post-Secondary Education and Employment A. Transition to Post-Secondary Education B. Resources for Education C. Free Application for Federal Student Aid D. Ready, Set, Plans E. Family Educational Rights and Privacy Act F. Post-Secondary Education for Youth with Intellectual Disability G. It's Never Too Early to Plan H. Transition to Employment I. Workforce Innovation and Opportunity Act J. Let’s Explore K. SSI and Work Can Go Together L. Section 301 M. Review N. Summary Section 6: Conclusion A. Summary B. Course Contributors C. Resources D. References E. Congratulations! F. Exam
Karen Luken, MS received her bachelor’s degree in therapeutic recreation from the University of Illinois-Urbana and her graduate degree in Recreation and Leisure Studies and a certificate in public health from UNC-Chapel Hill. She has more than 35 years of experience in disability and health, recreational therapy practice, research and education, and grants management. Karen has worked with individuals with disabilities and their families in a variety of settings, including community psychosocial rehabilitation programs, in-patient and out-patient psychiatry, physical medicine and rehab hospital, residential services, and managed care organizations. Karen is committed to the implementation of innovative practices that support people with disabilities living in their community of choice. She has published articles on cancer screening for women with developmental disabilities, cardiovascular disease and adults with disabilities, community design and active living, retirement options for adults with developmental disability, creating inclusive environments for people with disabilities, and health promotion programs for people with disabilities. Disclosure: Karen Luken, MS has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.Staff Writer: Nellie Galindo, MSW, MSPH
Nellie Galindo received her Masters of Social Work and Masters of Science in Public Health from the University of North Carolina at Chapel Hill. She has worked with individuals with disabilities in several different settings, including working as a direct service provider for individuals with mental illness and leading a youth program for young adults with disabilities. She has facilitated and created trainings for individuals with intellectual and developmental disabilities in the areas of self-advocacy, healthy relationships, sexual health education, and violence and abuse prevention. Mrs. Galindo has worked in state government assisting individuals with disabilities obtain accessible health information in their communities, as well as utilizing the Americans with Disabilities Act to ensure equal access to healthcare services. Disclosure: Nellie Galindo, MSW, MSPH has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.
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