Nursing Needs for IDD-Related Syndromes: Part 1

Outline:
Section 1: Introduction

About This Course

Learning Objectives

Section 2: The Significance of Syndromes

Russell’s Story

Healthcare Needs for People with IDD

Review

Summary

Section 3: Down Syndrome

Overview of Down Syndrome

Health Impact of Down Syndrome

Additional Monitoring, Interventions, and Supports

Review 

Summary

Section 4: Autism Spectrum Disorder

Overview of Autism Spectrum Disorder

Health Impact of ASD

Additional Monitoring, Interventions, and Supports

Review 

Summary

Section 5: Fragile X Syndrome

Overview of Fragile X Syndrome

Health Impact of FXS

Additional Monitoring, Interventions, and Supports

Review 

Summary

Section 6: Prader-Willi Syndrome

Overview of Prader-Willi Syndrome

Health Impact of PWS

Additional Monitoring, Interventions, and Supports

Review

Summary

Section 7: Cerebral Palsy

Overview of Cerebral Palsy

Additional Monitoring, Interventions, and Supports

Review 

Summary

Section 8: Conclusion

Summary

Course Contributors

Resources

References

Dr. Kathy Auberry is a registered nurse practicing in the field of intellectual and developmental disability for the past twenty-seven years. Currently, she is a consultant in the field of disability. Previously, she served as an Assistant Professor of Nursing at Indiana University School of Nursing for 10 years and as the Director of Health Services/Director of Operations for an organization supporting individuals with intellectual and developmental disabilities experiencing complex health needs for 17 years. Dr. Auberry possesses a Doctor of Nursing Practice Degree, and a Master of Science in Nursing ‘Healthcare Leadership with a Focus in Education’, as well as certification in developmental disabilities nursing. Dr. Auberry’s research interest is improving healthcare services for individuals with disability and complex healthcare needs residing within community settings. She is the author of several publications focused on improving healthcare for this population. Disclosure: Kathy Auberry, DNP, MSN, RN, CDDN has no Relevant Financial or Non-Financial Relationship with ineligible companies to disclose.

Jessica Gramp is a SME Writer at Relias. Her primary writing responsibilities are in the Health and Human Services vertical, in the content area of intellectual and developmental disabilities.  Jessica received her Bachelor of Science in Health Science, with a concentration in Disability Studies and Human Development, from Stony Brook University. She has eight years of experience serving people with intellectual and developmental disabilities and their supporters, including roles as direct support professional, case manager, and qualified professional. Her experiences and coursework over the years have allowed her to develop a strong knowledge of person-centered planning and care, community resources, and service delivery. Disclosure: Jessica Gramp, BS, QIDP has no Relevant Financial or Non-Financial Relationship with ineligible companies to disclose.