Care during the final days and hours of life requires specialized knowledge of the physical, psychological, and spiritual needs of the child and family. This course focuses on care of the child and family in the child’s final days or hours of life, while emphasizing the preparation necessary to ensure the best care at this critical point in the family’s life. The goal of this course is to provide nurses in hospice and palliative care with knowledge of caring for an imminently dying child and their family.
Outline:
Section 1: Introduction
About This Course
Learning Objectives
Section 2: Preparation for Death
Pediatric Dying and Death
Pediatric Death Is a Unique Experience
Role of the Nurse in the Final Days
Being Present
The Dying Child
The Family
Site of Death
Communication in Last Days
Maintain Hope
Education About Last Hours
Review
Summary
Section 3: The Imminently Dying Child: Signs, Symptoms, and Nursing Interventions
The Imminently Dying Child
Psychosocial and Spiritual Issues
Family Practice/Ritual
Assessing/Managing Physical Symptoms
Physical Symptoms
The Death Vigil
Review
Summary
Section 4: Death and Care Following Death
Death: When the Time Comes
Supporting the Family After the Death
Death in the NICU
Provide Personal Closure
Removal of the Body
Assisting the Family
Funeral Arrangements and Bereavement Support
Review
Summary
Section 5: Conclusion
Course Summary
Course Contributors
Resource
References
The content for this course was revised by Amy Haskamp, MSN, RN, PCNS-BC, CPON, CHPPN.
Amy Haskamp is a Pediatric Clinical Nurse Specialist for the Pediatric Palliative Care Team (PACT) at Riley Hospital for Children at Indiana University Health Hospital. She has over 16 years of experience caring for children with cancer before joining PACT in 2014. Working with the oncology population, she became interested in pain management, psychosocial support, and pediatric palliative care. She lectures and teaches at the local, national, and international level, and has been a member of the ELNEC pediatric faculty since 2011. Ms. Haskamp is an active reviewer for pediatric palliative care education and has co-authored several publications on pediatric palliative care.The content for this course was created by The ELNEC Project Team.
Disclosure: ELNEC Pediatric 2021 has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.
The ELNEC Project, which began in 2000, is a collaboration between the American Association of Colleges of Nursing (AACN), Washington, DC and the City of Hope, Duarte, CA. For more information about ELNEC, go to www.aacnnursing.org/ELNEC.
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