Ethical issues and dilemmas are inherent in care provided to children and their families in palliative care. It is important that healthcare professionals are aware of and have access to a wide variety of professional codes and standards that serve to facilitate resolution of ethical dilemmas. In this course, you will learn about some of the common ethical issues encountered in pediatric palliative care and ways to address these issues. The goal of this course is to provide nurses in hospice and palliative care with knowledge of ethical and legal issues in pediatric palliative care.
Section 1: Introduction
About This Course
Section 2: Ethical Issues
Section 3: Common Ethical Dilemmas in Pediatrics
Prolongation of Life
Redirection of Care: NOT Withholding or Withdrawing Care
Potentially Inappropriate Treatment
Principle of Double Effect
Section 4: Addressing Ethical Issues
Four Box Method
Quality of Life
Advance Care Planning
Pediatric Advance Care Planning Guides
Parental Insistence on Treatment
Section 5: Conclusion
The content for this course was revised by Amy Haskamp, MSN, RN, PCNS-BC, CPON, CHPPN.
Amy Haskamp is a Pediatric Clinical Nurse Specialist for the Pediatric Palliative Care Team (PACT) at Riley Hospital for Children at Indiana University Health Hospital. She has over 16 years of experience caring for children with cancer before joining PACT in 2014. Working with the oncology population, she became interested in pain management, psychosocial support, and pediatric palliative care. She lectures and teaches at the local, national, and international level, and has been a member of the ELNEC pediatric faculty since 2011. Ms. Haskamp is an active reviewer for pediatric palliative care education and has co-authored several publications on pediatric palliative care.
The content for this course was created by The ELNEC Project Team.Disclosure: ELNEC Pediatric 2021 has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.
The ELNEC Project, which began in 2000, is a collaboration between the American Association of Colleges of Nursing (AACN), Washington, DC and the City of Hope, Duarte, CA. For more information about ELNEC, go to www.aacnnursing.org/ELNEC.
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