Perinatal and neonatal palliative care have their own unique characteristics and concerns of which healthcare professionals must be aware. This course provides an overview of these unique aspects and concerns of perinatal and neonatal palliative care and provides suggestions for providing high quality care. The goal of this course is to provide nurses in hospice and palliative care with knowledge of perinatal and neonatal palliative care.
Outline:
Section 1: Introduction
About This Course
Learning Objectives
Section 2: Perinatal and Neonatal Hospice and Palliative Care
History of Neonatal Intensive Care Units (NICU)
Awareness of Perinatal and Neonatal Palliative Care
Standards of Professional Practice
Epidemiology
Types of Perinatal/Infant Loss
Review
Summary
Section 3: Care Strategies and Challenges
Perinatal Palliative Care Model of Care
Implementing Perinatal Palliative Care Strategies
Challenges in Perinatal Palliative Care
Strategies to Overcome Challenges to Perinatal Palliative Care
Perinatal Communication: What Parents Want
Implementing Perinatal Palliative Care Strategies
Support During the Pregnancy
Intrapartum Care
After the Infant’s Death
Lactation
Unique Characteristics of Perinatal Bereavement
Review
Summary
Section 4: Neonatal Palliative Care
Newborns to Receive Palliative Care
Unique Feature of Neonatal Palliative Care
Communication: What Parents/Caregivers Want in the NICU
Communication Strategies in the NICU
Consider This…
Ethical Issues in Neonatal Palliative Care
Nutrition and Hydration
Resolving Ethical Dilemmas
Withdrawal of Mechanical Ventilation: Preparation
Withdrawal of Mechanical Ventilation: Process
When Death Is Prolonged
Location of Death for the Neonate
Celebrating the Infant’s Life
Right of Parents
Review
Summary
Section 5: The Nurse’s Experience
Experience with the Dying Infant
Moral Distress
Review
Summary
Section 6: Conclusion
Summary
Course Contributors
Resources
References
The content for this course was revised by Amy Haskamp, MSN, RN, PCNS-BC, CPON, CHPPN.
Amy Haskamp is a Pediatric Clinical Nurse Specialist for the Pediatric Palliative Care Team (PACT) at Riley Hospital for Children at Indiana University Health Hospital. She has over 16 years of experience caring for children with cancer before joining PACT in 2014. Working with the oncology population, she became interested in pain management, psychosocial support, and pediatric palliative care. She lectures and teaches at the local, national, and international level, and has been a member of the ELNEC pediatric faculty since 2011. Ms. Haskamp is an active reviewer for pediatric palliative care education and has co-authored several publications on pediatric palliative care.The content for this course was created by The ELNEC Project Team.
Disclosure: ELNEC Pediatric 2021 has no Relevant Financial or Non-Financial Relationship with ineligible companies to disclose.
The ELNEC Project, which began in 2000, is a collaboration between the American Association of Colleges of Nursing (AACN), Washington, DC and the City of Hope, Duarte, CA. For more information about ELNEC, go to www.aacnnursing.org/ELNEC.
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