End-of-Life Care for People with IDD

End-of-Life Care for People with IDD 

People with intellectual and developmental disabilities (IDD) face many of the same issues at the end of life as people without such disabilities. They also face additional issues and challenges. As people with intellectual disability (ID) live longer, they outlive family caregivers more frequently. This often requires additional supports in advanced age, different service locations, and additional planning. The number of people in this situation is expected to rise as the “Baby Boomer” generation moves into this age category (Heller, Gibbons, & Fisher, 2015).

This course will introduce basic legal and ethical guidelines for decision making at the end of life. Advanced planning can provide clarity in complex, stressful situations when people are unable to communicate or provide consent. Your knowledge of an individual’s preferences and rights, as well as ethics, will help you support the person you are serving and their families. This course provides basic information about some common medical decisions that are included in an end-of-life care plan, as well as information about specialized healthcare options such as palliative care and hospice.

The goal of this course is to introduce nurses, psychologists, social workers, and qualified IDD professionals to critical issues at the end of life for people with IDD.



$15.00

Hours: 1.00
REL-IDD-AAIDD-ELCPIDD

Certificates

Certificates provided by accrediting body (16 Match)

National Alliance for Direct Support Professionals

1.0 HOURS


This activity is approved for 1.00 contact hours.

California Board of Registered Nursing

1.0 HOURS


Provider approved by the California Board of Registered Nursing, CEP# 13791
Nurses will receive 1.00 contact hours for participating in this course.

District of Columbia Board of Nursing

1.0 HOURS


District of Columbia Board of Nursing Approved Continuing Education program (CEBroker Provider #50-290).
Nurses will receive 1.00 contact hours for participating in this course.

Florida Board of Nursing

1.0 HOURS


Florida Board of Nursing (CEBroker Provider #50-290).
Nurses will receive 1.00 contact hours for participating in this course.

American Nurses Credentialing Center

1.0 HOURS


In support of improving patient care, Relias LLC is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.



Georgia Board of Nursing

1.0 HOURS


Georgia Board of Nursing (CEBroker Provider #50-290).
Nurses will receive 1.00 contact hours for participating in this course.

Accreditation Council for Continuing Medical Education

1.0 HOURS


In support of improving patient care, Relias LLC is jointly accredited by the Accreditation Council for Continuing Medical Education (ACCME), the Accreditation Council for Pharmacy Education (ACPE), and the American Nurses Credentialing Center (ANCC), to provide continuing education for the healthcare team.




Relias LLC designates this enduring activity for a maximum of 1.00 AMA PRA category 1 Credits™. Physicians should only claim credit commensurate with the extent of their participation in the activity.

South Carolina Board of Nursing

1.0 HOURS


This program was approved by the South Carolina Board of Nursing Approved Continuing Education Program (CEBroker Provider #50-290).


Nurses will receive 1.00 contact hours for participating in this course.

Florida Board of Medicine

1.0 HOURS


Florida Board of Medicine (CEBroker Provider #50-290).

West Virginia Board of Registered Nursing

1.0 HOURS


West Virginia Board of Registered Nursing (CEBroker Provider #50-290).


Nurses will receive 1.00 contact hours for participating in this course.

New Mexico Board of Nursing

1.0 HOURS


New Mexico Board of Nursing (CEBroker Provider #50-290).


Nurses will receive 1.00 contact hours for participating in this course.

Arkansas State Board of Nursing

1.0 HOURS


Arkansas State Board Of Nursing Approved Continuing Education program (CEBroker Provider #50-290).


Nurses will receive 1.00 contact hours for participating in this course.

Ohio State Medical Board

1.0 HOURS


State Medical Board of Ohio (CEBroker Provider #: 50-290)

Louisiana State Board of Medical Examiners

1.0 HOURS


Louisiana State Board of Medical Examiners (CEBroker Provider #: 50-290)

Mississippi State Board of Medical Licensure

1.0 HOURS


Mississippi State Board of Medical Licensure (CEBroker Provider #: 50-290)

National Alliance for Direct Support Professional Frontline Supervisor Training

1.0 HOURS


Course Details

Course Code: REL-IDD-AAIDD-ELCPIDD
Hours: 1
Type: Online Course
Content Expiration Date: 8/31/2023
Learning Objectives:
Provide a brief history of how dying has been treated in medical and at-home settings.
Describe a “good death” and the needs of individuals who are dying.
List 3 signs of approaching death.
Describe how you can support people with IDD as they experience grief and loss.
Describe how to make a plan for end-of-life care.
Define palliative care and hospice care.
Describe the scope of end-of-life planning documents.
Differentiate between competency and capacity
Describe how to use supported decision making to help people with IDD express their end-of-life wishes.
Describe the roles medical ethics and ethics committees play in end-of-life decision making.

Outline:
Section 1: Introduction

About This Course

Learning Objectives

Section 2: A Good Death

Life Expectancy

A Look Back

Death as a Medical Problem

What is a Good Death?

Spirituality

Grief and Loss

Importance of Ritual

Providing Supports that Match the Needs of the Person

Meet Molly

Redefining Hope

Reflection

Review

Summary

Section 3: Last Stages of Life

The Dying Process

Disability vs. Illness

Quality of Life

Signs of the End of Life

Treatment Decisions

What is Palliative Care?

What is Hospice?

Life Ceasing Situations

Review

Summary

Section 4: Communicating and Planning Ahead

Meet Edward

End-of-Life Care Plans

Legal Documents

Person-Centered Planning

Revisiting Edward

Supporting the Development of an End-of-Life Care Plan

Asking Healthcare Questions

Discussing Treatment

Location Preferences

How to Talk About Dying

Review

Summary

Section 5: End-of-Life Decision Making

Medical Decision Making

Informed Consent

Capable versus Competent

Supported Decision Making

Quick Check

Principles for End-of-Life Care

Paul: Transplant or Hospice?

The Role of Ethics Committees

Ethics and Capacity

Review

Summary

Section 6: Conclusion

Summary

Course Contributors

References

Congratulations!

Staff Writer: Katy Kunst, MBA, QIDP
Katy Kunst received her Bachelor of Arts in Psychology from the University of North Carolina at Chapel Hill, and her Master of Business Administration from Elon University. She has 14 years of experience serving people with intellectual and developmental disabilities and their supporters, including roles as direct support professional, program director, and training facilitator. She has created and facilitated training on topics including non-violent crisis interventions, person-centered planning, cultural competence, quality service delivery, regulatory compliance, and a variety of topics related to IDD services. Disclosure: Katy Kunst, MBA, QIDP has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.
Instructor: Margaret A. Nygren, EdD
Margaret A. Nygren, EdD, is the Executive Director and CEO of the American Association on Intellectual and Developmental Disabilities (AAIDD). Prior to her work at AAIDD, she held two progressively-responsible positions at the Association of University Centers on Disabilities, concluding her service to the organization as the Associate Executive Director for Program Development. Additional previous positions include a Fellowship in the Disabled and Elderly Health Programs Group at the Centers for Medicare and Medicaid Services (CMS) in Baltimore, Director of the Center on Aging and Disabilities at the Lieutenant Joseph P. Kennedy Institute in Washington, DC, and Director of Family Support Services and Director of Mental Retardation Services at Kit Clark Senior Services in Boston. Dr. Nygren earned a Doctorate of Education in Organizational Leadership from Nova Southeastern University, a MA in Clinical Psychology from West Virginia University, and a BA in Psychology from Beloit College. Disclosure: Margaret A. Nygren, EdD has declared that no conflict of interest, Relevant Financial Relationship or Relevant Non-Financial Relationship exists.
Target Audience:
The target audience for this course is: Direct Support Professionals; Nurses; Physicians; in the following settings: Intellectual Developmental Disabilities.
Relias will be transparent in disclosing if any commercial support, sponsorship or co-providership is present prior to the learner completing the course.
Course Delivery Method and Format
Asynchronous/Online Distance Learning; please see certificate details for specifics on delivery format.
Relias has a grievance policy in place to facilitate reports of dissatisfaction. Relias will make every effort to resolve each grievance in a mutually satisfactory manner. In order to report a complaint or grievance please contact Relias.
If you require special accommodations to complete this module, please contact Relias Support by completing the web form (https://www.relias.com/help) or by using the chat functionality.
All courses offered by Relias, LLC are developed from a foundation of diversity, inclusiveness, and a multicultural perspective. Knowledge, values and awareness related to cultural competency are infused throughout the course content.
Reference herein to any specific commercial product, process, or service by trade name, trademark, service mark, manufacturer or otherwise does not constitute or imply any endorsement, recommendation, or favoring of, or affiliation with, Relias, LLC.
All characteristics and organizations referenced in the following training are fictional. Any resemblance to any actual organizations or persons living or dead, is purely coincidental.
To earn continuing education credit for this course you must achieve a passing score of 80% on the post-test and complete the course evaluation.
Accommodations
If you require special accommodations to complete this module, please contact Relias Customer Support here.